Members' Stories

Read other members' stories from around the world

Claire

My story really begins where you find me today, typing up my CES journey to put on the site, hoping that it will become a small part in what the CESA manages to achieve in raising awareness of the condition, helping stop the unnecessary suffering of even more people and providing support in every way to those people who have Cauda Equina Syndrome.

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CES Down Under

I was diagnosed with Cauda Equina Syndrome in August 2012, when I had a degenerative bulging disc crush the nerves in my l4 – l5. I was playing touch football with my father at the time when I felt a twinge in my back.

Over the next three days going back and forth, I was eventually sent to emergency after a CT scan showed that I was in big trouble. The pain was excruciating.

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Sharyn

My CES story began in 2006 when I started having a strange weakness in my left leg. It was causing me significant pain but only when walking. I thought I'd pulled a muscle or something. So I ignored it for a few weeks. I thought it would settle down if I rested but several weeks later it was still happening. So I made an appointment with my GP. He was very dismissive and said that there wasn't anything wrong with my leg and I should try losing some weight. He stated that all I needed to do was to exercise more!

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Peter

My CES story began in 2006 when I started having a strange weakness in my left leg. It was causing me significant pain but only when walking. I thought I'd pulled a muscle or something. So I ignored it for a few weeks. I thought it would settle down if I rested but several weeks later it was still happening. So I made an appointment with my GP. He was very dismissive and said that there wasn't anything wrong with my leg and I should try losing some weight. He stated that all I needed to do was to exercise more!

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Jack

I suffered a serious fall which crushed my L5 vertebrae, both discs above and below and damaged the L4 and S1 vertebrae. Nerve damage is pretty extensive with more or less total loss of all the S roots and partial loss on L4 and L5. I have almost no muscle power below the knee with loss of sensory in both feet, up the back of both legs and into the saddle area. My thigh muscles are ok so I have power in my knee joints.

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Davender

I suffered a serious fall which crushed my L5 vertebrae, both discs above and below and damaged the L4 and S1 vertebrae. Nerve damage is pretty extensive with more or less total loss of all the S roots and partial loss on L4 and L5. I have almost no muscle power below the knee with loss of sensory in both feet, up the back of both legs and into the saddle area. My thigh muscles are ok so I have power in my knee joints.

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Doreen

I fell out of a window at work in 1996 from the ground floor and for 15 months was left with severe back pain. I was told repeatedly that I had sciatica and was prescribed with stronger pain killers.

My husband took me to see a chiropractor in the hope that she could ease my pain, but I think this only masked the problem.

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Orlando

On a Sunday in 2001 at the age of 50, I had a fall from a ladder and destroyed L3 vertebra. I was incontinent at the accident scene. I was taken by Ambulance to hospital. In casualty I asked if I was going to be incontinent, and was answered abruptly 'Yes you are now'. I was fitted with an indwelling catheter which I did not feel being inserted. I had lost sensation in the back of my legs, my bottom area, and my feet. I now believe my medical records will confirm that I was displaying all the Red Flag Symptoms suggesting Cauda Equina Syndrome

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